Tuesday, September 1, 2009

The President Called. He's Looking for His Obama Port.

Today's post title is courtesy of one of Mom's oldest and best friends, Marilyn R. who "Mom-sat" last night while her daughter and I went out to dinner. Clever clever.

Results galore this morning, finally!

1. The cytology report showed that Mom's cerebral spinal fluid (CSF) is clear of cancer cells, which is extremely encouraging news. What they were looking at exactly was the fluid extracted last Friday before her intrathecal chemo treatment. Before every treatment, they pull out some fluid for analysis and are constantly checking cell counts and comparing them to previous samples.

2. The MRI conducted of her spine last night showed that there is "disease in the spine," which they know because there are tiny indents and holes in the bone. As far as they can see, there are no masses in the spine, and there is no direct impact on the nerves as of yet. As the covering oncologist said, "we care more about nerves than we do bone." So at this point, we're not terribly concerned because this could have been there for a while. It does not give us any answers about the numbness/tingling in her feet, but Mom says those symptoms have improved a bit since yesterday. Moving helps, so we're pacing the halls like crazy people.

3. Taking in adequate nutrition is an immediate concern. How much would you want to eat if you could only have "nectar thick" foods, had to cough, turn your head to the right, swallow, cough, and repeat? Hydration and nutrition will quickly become an issue, especially as we continue to hit her with chemotherapy. She needs calories and reserves to keep ticking. Today we started the discussion of placing a gastronomy tube or "G tube." This would provide direct means in which Mom can get both nutrition and hydration, while also keeping her intestines and gut moving. It will help her put on weight, have more energy, and take the pressure off of myself, the "how about another sip of ensure, Mom" daughter. When we see Dr. Donadio on Friday, we'll have a better sence of when they'll place the G tube.

On to the plan: Mom will receive her intrathecal Methotrexate via the "Obama Port" in a few hours and then we are HOMEWARD BOUND! Avon Mountain, watch out. We're coming over.

Wednesday and Thursday will be filled with visits from Mom's sisters, brothers, nephews, nieces, a masseuse, and a mani/pedi. One must never have unkempt nails in times such as these.

Friday we're back in for intrathecal chemo and and appointment with Dr. D.

Too many amazing things happen in a day to share all of them, and I know I don't give enough credit to individuals as often as I should, so please forgive my brain, because I assure you nothing is overlooked. Mom woke up as her nurse came in and said, "I just wake up every day and choose to be happy. Happiness is a choice, and it has served me well." Not 20 minutes later was she blessed with a visits from all sorts of administrators and physicians that have become her friends over the years from all walks of life. There is a chair pulled up to her bed that is a constant rotation of physical evidence, to how if we treat those around us well, we'll be treated the same in return. Makes you think. Happiness is a choice. Do the right thing, and it will serve you well. Seems simple enough, doesn't it?

That's all the news fit to print, for now anyway.

10 comments:

Planet said...

Dear, dear Monica,
Thank you for being you. thank you for the updates too, and Gwennie, I love you guys.
Gary's brother is back in the hospital again partly because of his cancer, which they cannot cure. He is a head trauma patient from an accident 40 years ago, and he doesn't remember why he's in the hospital from one moment to the next. So, he forgot he was on medication and weak and he tried to walk, and he fell and fractured his hip. So he is not doing well at all. But I'd like to find time to come up and see Babette next week, if she'll be home, or where ever she may be. I'll call your cell next week.
I love you!
Claire

Monica Talbot said...

Thank you, Claire!

Lots of love to you, Gary, and his brother from our whole crew. There will be lots of time to visit later on!

Unknown said...

Take it from me, life is not about waiting for the storms to pass, it's about learning how to dance in the rain.

Left some "free range, organic chicken broth" at your door.

Joy XOXO

Claude said...

Happiness is a choice. Amazingly true. Also amazing is Liz ever-present smile. It was beautiful to look at this post and see two pictures side by side of my dear sister with the same brilliant smile. I'm PSYCH-K'ed about coming down to do some energy healing with you today.
Love, Coco
PS Claire and Gary - keep those chins up.

Elizabeth said...

Monica, I am so encouraged by your ongoing ability to drink beers with s'mores. What a gastronomic talent, and, I'm sure, an inspiration to your mother. Good girl. xo E

Gwennie Talbot said...

Well said, E.

Linda P - TEAM SOS said...

Monica and Gwennie,

Thank you so very much for keeping us all informed about Lizzie's journey. It is so valuable to all of us in so many, many ways. Much love to all of you and please give you Mom a big hug for me.

Linda

Unknown said...

How's the patient after yesterday's chemical cocktails? Joy XO

Anna said...

Dear Monica and all,

I have just figured out where this blog is! I have always known Babette as a special person, but this blog makes it much more evident how special she is and to so many people. Her strength and glow show in the photos and in her words. She is an inspiration and an outstanding woman.
While Maddie was at MPS I always felt that she had another mom ready and willing to help out. Also, I can never thank Babette enough for the all the support she gave me coping with Maddie being so far away. I am thinking of you all every day. All my love, Ann

trix said...

Monica,

Have you ever heard of something called "Harmonium"? it's kind of like Reki (sp?).It's a sort of healing massage, relatively new. Supposed to be really great. A client of mine is doing it now. Would that be something Babette would be interested in? I could bring her up, my treat, for a session.
Trix